I’m part of a project looking at ethically conscious public involvement. The aim is to update an existing, published ethical framework via a literature review and a series of workshops. EPIRD is a really collaborative project with input from the Research Design Service (RDS), Health Research Authority (HRA), and members of the public. We are focusing on public involvement at the very start of research projects (research design), however I hope that some of what we produce will be helpful when thinking about ethical approaches more generally.
The project is funded by INVOLVE and the HRA
The core EPIRD team are:
Raksha Pandya-Wood, Duncan Barron, Delia Muir, Lucy Frith, Julie Hapeshi (RDS)
Jim Elliott (HRA)
Victoria Hamer and Jennifer Bostock (public contributors)